5 Tips for Providing Parkinson's Disease Home Care for a Loved One

Receiving a diagnosis of Parkinson's disease, whether for yourself or a family member, can be a daunting experience. However, with the right support, Parkinson's disease home care is a completely viable option that allows a person to remain in their own home. It’s important to remember that this diagnosis doesn’t automatically mean a move to a care home is necessary. High-quality support, including assistance with personal care, can make all the difference. Arranging for dedicated parkinson's care ensures that your loved one can stay in a comfortable and familiar setting for as long as possible.

There are many types of care services available, from private providers to support offered by charities like Parkinson's UK. Understanding this progressive neurological condition is the first step. With the right help, parkinson's patients can continue to lead fulfilling lives. This article will explain the key parkinson's symptoms and how you and your family can best prepare to receive care in a familiar environment, even into the advanced stages of the condition, always focusing on well-being.

What is Parkinson's disease?

Parkinson's disease is a progressive condition affecting the brain. It develops when nerve cells that produce a chemical called dopamine stop working correctly. This loss of dopamine leads to problems with movement and other related symptoms. The condition typically affects people over 50, but it can be diagnosed in younger people as well.

As the disease advances, the symptoms become more pronounced. While each person will experience Parkinson's differently, there are three main symptoms:

• Involuntary shaking (tremors): Often starting in the hand or arm.
• Stiff muscles: This can make it difficult to make facial expressions or swing your arms when walking.
• Mobility problems and slow movement: Everyday actions can become difficult and time-consuming.

People with Parkinson's may also face other challenges. These can include issues with balance and coordination, memory problems, anxiety, and depression. The impact on sleep is also a significant factor. It is a life-changing condition, but it's important to note that Parkinson's disease is not fatal. For most, it does not reduce life expectancy, although some complications can increase the risk of infections or falls.

There is currently no cure for Parkinson's. However, various forms of treatment and support are available to help you or your loved one maintain a good quality of life. A specialist will recommend a course of action based on specific symptoms, which may include medications, physiotherapy, and in some cases, deep-brain stimulation surgery. As the disease progresses, the effectiveness of medication can sometimes decrease, making other forms of support even more crucial.

1. Home Modifications

Many people with Parkinson's struggle with movement and balance, which impacts their ability to navigate their home safely. This can lead to a higher risk of falls and injuries. Simple modifications to the home environment can dramatically improve safety.

Your local authority may be able to provide an assessment for home aids and adaptations. Even without this, you can make small changes. A professional carer can also assist with light housekeeping to ensure the home remains free of hazards. As muscle stiffness can make movement unpredictable, it's vital to create clear and safe pathways.

In the bedroom, you might need to:

• Remove all trip hazards like loose rugs, clutter, and trailing wires.
• Use nightlights to illuminate the path to the bathroom.
• Add a bed rail or consider an electric adjustable bed to make getting in and out of bed easier and safer.

In the bathroom, you might need to:

• Install secure grab rails in the bath, shower, and near the toilet. Never use towel rails or radiators for support.
• Use non-slip mats in the bath or shower.
• Install a raised toilet seat and a shower chair to reduce the strain of standing and sitting.

In the kitchen, you might need to:

• Purchase adapted utensils with easy-grip handles.
• Rearrange cupboards so frequently used items are easily accessible without bending or stretching.
• Lower countertops if your loved one needs to sit while preparing food.

These modifications are all designed to make daily life safer and more comfortable, but are ultimately all subject to personal needs. For greater mobility challenges, a stairlift can be a life-changing installation. An occupational therapist is the best person to advise on specific modifications for your home.

2. Simplifying Activities

Parkinson's can make many daily tasks more challenging. This is due to both physical symptoms and the cognitive effects of the condition, such as anxiety or memory problems. Modifying activities is key to maintaining independence.

Encourage your loved one to take their time and not rush. Adhering to medication schedules is also extremely important to manage symptoms. Simple changes can make a big impact. For example, sitting down to brush teeth or shave can conserve energy. Using an electric toothbrush or razor is often easier and safer. When dressing, suggest they sit in a supportive chair. Opting for clothes with elastic waists or Velcro fastenings instead of complex buttons can reduce frustration.

When it comes to meals, easy-grip cutlery and straws for drinks can help. These adaptations prevent spillages, allowing for a more enjoyable and dignified dining experience. A well-thought-out care plan will include these small but significant details.

3. Staying Mobile

As Parkinson's progresses, mobility often declines. However, it's crucial to encourage your loved one to stay as active as possible. While balance problems and stiffness might make them hesitant, inactivity will likely worsen these issues. Regular exercise is essential.

If they are already active, they should aim to continue, perhaps discussing any new limitations with their GP or specialist. If they are new to exercise, they should start gently. The focus should be on:

• Aerobic activity: Gentle exercises like walking or seated leg raises to increase heart rate.
• Flexibility: Regular stretching to combat muscle stiffness.
• Strength: Light weight-lifting, yoga, or daily activities like carrying shopping bags.
• Balance: Simple exercises like standing on one leg, or trying tai chi.

The NHS recommends that people over 65 do activities to improve strength, flexibility, and balance at least twice a week. This is especially important for people with Parkinson's. Beyond the physical benefits, exercise is a powerful mood booster, which is vital as depression and anxiety can be part of this life-changing journey for many people living with the condition.

Parkinson’s UK has some advice on getting active with Parkinson’s.

4. Coping with Cognitive Changes

Many people with Parkinson's experience changes in their mental health. Depression and anxiety can be a reaction to the diagnosis or a direct result of chemical changes in the brain.

Your GP can offer advice on treatment. This might start with self-help methods like gentle exercise, a healthy diet, and good sleep hygiene. They may also refer your loved one for therapy, such as CBT, or prescribe medication.

Financial worries can add to the stress. It's worth exploring what benefits your loved one may be entitled to. As a family carer, you might also be able to claim Carer's Allowance.

In some cases, people develop memory problems or dementia. Discuss these symptoms with the specialist, as they may be able to adjust medications. Simple memory aids like to-do lists, alarms, and pill dispensers can be very effective. It’s also wise to discuss legal matters like setting up a power of attorney with a solicitor.

5. Looking After Your Own Mental Health

Caring for a loved one is rewarding, but it can also be emotionally and physically exhausting. It's vital to look after your own well-being. Many family carers report feeling isolated or overwhelmed.

Make sure you are eating well and getting enough sleep. Try to maintain your own hobbies and relationships. Support groups in your local area can connect you with others in a similar situation. If you are struggling, speak to your own GP.

Remember, you don't have to do it all alone. Arranging for professional home care services, even for just a few hours a week, can provide a much-needed break. This can be arranged at short notice for emergencies or planned as regular respite. This allows you to rest and spend quality time with your family member, rather than focusing solely on their care needs. A fully managed service can provide peace of mind and handle the complexities of arranging long-term care.

What do I need to know about Parkinson's disease home care?

If your loved one has recently been diagnosed with Parkinson's, they will likely be able to continue living in their own home with extra support. Whether you plan to provide this care yourself or hire a care worker, a few key considerations can make a significant difference. Organising palliative care at home can also be an option in the very late stage Parkinson's, ensuring comfort and dignity.

As the disease progresses, they will also probably need some level of personal care. A focus on a balanced diet and gentle exercise can significantly improve overall health. Even just a few hours of professional help each week can provide much-needed respite and expert assistance. This support can help manage symptoms like slow movement and improve control over body movements.

Choosing the Right Parkinson's Care Services

When the time comes for professional help, choosing the right provider is essential for your loved one's quality of life. The goal is to find services that offer the best quality support with a highly personalised and compassionate approach. Look for a provider who understands that parkinson's care at home is about more than just household management; it’s about enhancing well-being.

The benefits of a professional service include having expertly trained carers who understand the nuances of the condition. They can create a highly personalised care plan that addresses the specific needs of your loved one, adapting it as the disease progresses. This personalised approach ensures that the loved one's care is always appropriate and supportive.

If you’re feeling overwhelmed with the responsibility of providing Parkinson’s disease home care, bringing in a home care service or live-in carer, whether long-term or for a short while, might allow you to take regular breaks.