Knowing how to care for a loved one with Huntington’s disease can be difficult but we have professionally trained care assistants who can help.
We understand that Huntington’s disease impacts each person and their family differently. That’s why we create a unique care plan tailored to your needs and regularly check with you to see if adjustments need to be made. Depending on the severity of the condition we can provide regular care visits or a full-time live-in care service. Contact us today to learn more about how we can help.
Whatever your care needs and wherever your loved one is on their care journey, please contact us and let’s talk. We're here to help.
Huntington’s disease is a progressive condition that causes nerve cells in the brain to break down. Approximately 7,000 people are living with Huntington’s Disease in the UK.
The condition is caused by a mutation in a singular gene, which means if a parent has Huntington’s disease there is a 50% chance that their children will also develop the condition. Symptoms usually develop between the ages of 30 and 50 years and symptoms progress for the next 10 to 20 years. Symptoms include:
"A day in my life is very unpredictable and yet fulfilling at the same time. Most days are really good, especially when at the end of my day my client is completely comfortable with everything I have done to help them. However, other days are a little more work, particularly when dealing with episodes of confusion. It always helps to remember that my client is also human and has good and bad days just as I do."
People diagnosed with Huntington’s disease are relatively young, so the idea of moving to an old people’s home is upsetting and unsettling. Most people with Huntington’s disease prefer to receive care at home in a familiar setting surrounded by people they know.
Our care assistants can help people with Huntington’s disease to maintain their independence by assisting with a wide variety of tasks. These might include:
Our home care services are based on personal experience
We understand, first-hand how important it is to secure flexible and bespoke home care for your loved one.
“Tiggo Care is born out of my own personal experiences, following my struggle to find suitable care for my parents, both of whom lived with rare diseases..."
Chris Williams - Tiggo Care Founder
At Tiggo Care we understand how precious your loved one is to you and how unique they are. We also appreciate how overwhelming it can be to research and source the most suitable type of care.
We fundamentally believe that there is no ‘one size fits all’ care package and like to work with you and your loved one to understand your specific requirements. We’ll then create a tailored care package and match your relative with their ideal carer.
Unlike some other care providers, we are fully regulated by the Care Quality Commission. This means we are regularly inspected, rated and audited to ensure we are a safe, effective, caring, responsive and well led organisation, committed to delivering the best possible care.
We’re also proud members of the Homecare Association, the U.K’s membership body for home care providers, which holds organisations to a high set of standards and requests them to abide by a strict code of practice
At Tiggo Care, all of our carers undergo a rigorous recruitment and induction process. They are fully vetted and background checked, with all references followed up. Our carers undertake their training on the best eLearning system currently available within the UK care market, ensuring they are well placed to deliver the best possible service. Specialist training courses such as moving and handling, medications and basic life support are also completed by our carers face to face, as we feel these courses are more effective when delivered in person.
If you like what you've read and are ready to access one of our care services or perhaps just have some questions, please follow our simple 3 step process below.
Send us some additional information about your request by emailing us or by using the form below. Alternatively, if you would prefer to speak with someone directly, please feel free to call us.
Our care manager will arrange a free consultation with you at your loved one’s home to better understand your requirements, create a personalised care plan and pair your loved one with a suitable carer.
And that’s it. You’re all set! We’ll introduce you to your loved one’s carer and the whole team, who’ll be able to provide you with all the ongoing support you’ll need.
People with Huntington’s disease do not need a care assistant during the early stages of the disease but as the condition progresses they will need assistance from professional care assistants.
Currently, there is no cure for Huntington’s disease but there are medications available to ease some symptoms. Occupational therapy and physiotherapy can help with mobility and everyday tasks.
During the early stages of Huntington’s disease people can live alone but as the condition progresses people living alone will require extra support from friends, family or professional care assistants.
GPs can refer you to a specialist for blood tests for Huntington’s disease, which are available for free through the NHS.
Contact our care team using the form below or by calling our office and we'll organise a free consultation to advise you on your specific care needs.