Are you looking for Rare Disease Home Care in London?

At Tiggo Care, we understand the complexities and challenges of providing specialised rare disease home care tailored to your loved one's unique needs.

Our rare disease home care service provides bespoke support designed to meet your loved one's specific needs, whether that’s assisting with daily routines or helping navigate complex care situations. We understand that rare diseases can affect people in many different ways, and your loved one might need assistance ranging from personal care and medication adherence to facilitating social interactions and mental well-being.

With Tiggo Care, you can expect compassionate, professional, and person-centred care for your loved one. Contact us today to learn how Tiggo Care can help you and your family.

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Tested, Trusted, Award-Winning Care Services

Hear From Our Happy Clients

Hear from our customers about how our bespoke home care services have drastically improved the quality of life of their loved ones.

Speak to our care team today on 020 8102 8628

We do more than home visits for people with rare diseases

Whatever your care needs and wherever your loved one is on their care journey, please contact us and let’s talk. We're here to help.

What is a Rare Disease?

Rare diseases are health conditions found in a small subset of the population, often presenting unique and complex challenges for those diagnosed.

Rare diseases are conditions affecting fewer than 1 in 2,000 people. Despite each condition being rare, there are over 7,000 known rare diseases, and this number continues to grow as medical research uncovers new conditions. Rare diseases can be chronic and often present significant challenges in diagnosis and treatment due to their unique and varied nature. 

While rare, these conditions are collectively common, affecting around 1 in 17 people during their lifetime. Over 3.5 million people in the UK live with a rare disease. These diseases can have a variety of causes, with around 80% thought to be genetic. However, rare diseases can also be caused by environmental factors, infections, or even as a result of other health conditions like high blood pressure.

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A day in the life with Sara

“I’ve seen how tough rare diseases can be on families. Every day is different, and sometimes it’s hard to know what’s next. But I’m here to help make things a bit easier. Whether it’s just popping by for a chat or helping with daily routines, I’m all about making sure your loved one feels comfortable and cared for. We’ll take it one step at a time together.”

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The Benefits of Home Care for Rare Diseases

Our rare disease home care service is based on Tiggo Care’s founder’s personal experience and offers tailored support that adapts to the unique needs of your loved one, making their daily life more manageable and comfortable. With Tiggo Care, your loved one can receive assistance with personal care, such as bathing or showering, dressing, and maintaining hygiene through dental care, shaving, and haircare. Meal preparation and feeding support are also available, ensuring nutritional needs are met. Medication routines can be complex, but our carers are there to help your loved one adhere to the regimen prescribed by their GP.

Our services are flexible, whether your loved one needs regular home care visits or live-in care. The care provided can adjust as your loved one's needs change, ensuring they receive the right level of support at the right time. With Tiggo Care, you can trust that your loved one is in safe and compassionate hands.

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Carer riding a bike on a bridge in central London

Why choose Tiggo Care?

Our rare disease services are based on personal experience

We understand, first-hand how important it is to secure flexible and bespoke home care for your loved one.

Chris Williams, Founder of Tiggo Care

“Tiggo Care is born out of my own personal experiences, following my struggle to find suitable care for my parents, both of whom lived with rare diseases..."

Chris Williams - Tiggo Care Founder

Read Chris’ Story

More reasons to choose Tiggo Care

Our Care packages are bespoke

At Tiggo Care we understand how precious your loved one is to you and how unique they are. We also appreciate how overwhelming it can be to research and source the most suitable type of care.

We fundamentally believe that there is no ‘one size fits all’ care package and like to work with you and your loved one to understand your specific requirements. We’ll then create a tailored care package and match your relative with their ideal carer.

We're fully regulated

Unlike some other care providers, we are fully regulated by the Care Quality Commission. This means we are regularly inspected, rated and audited to ensure we are a safe, effective, caring, responsive and well led organisation, committed to delivering the best possible care.

We’re also proud members of the Homecare Association, the U.K’s membership body for home care providers, which holds organisations to a high set of standards and requests them to abide by a strict code of practice

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Our carers are fully vetted & trained

At Tiggo Care, all of our carers undergo a rigorous recruitment and induction process. They are fully vetted and background checked, with all references followed up. Our carers undertake their training on the best eLearning system currently available within the UK care market, ensuring they are well placed to deliver the best possible service. Specialist training courses such as moving and handling, medications and basic life support are also completed by our carers face to face, as we feel these courses are more effective when delivered in person.

It's easy to get started...

If you like what you've read and are ready to access one of our care services or perhaps just have some questions, please follow our simple 3 step process below.

1

Get in touch

Send us some additional information about your request by emailing us or by using the form below. Alternatively, if you would prefer to speak with someone directly, please feel free to call us.

2

Discuss your needs

Our care manager will arrange a free consultation with you at your loved one’s home to better understand your requirements, create a personalised care plan and pair your loved one with a suitable carer.

3

Meet your carer

And that’s it. You’re all set! We’ll introduce you to your loved one’s carer and the whole team, who’ll be able to provide you with all the ongoing support you’ll need.

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Frequently Asked Questions

How can a care assistant support someone with a rare disease?

A care assistant can help with daily tasks like bathing, dressing, and medication support. Carers also offer companionship and can assist with attending appointments, ensuring your loved one feels comfortable and cared for at all times.

Can you provide respite care for people with a rare disease?

Yes, we can provide respite care for people with rare diseases. Our respite care service can give you or other professional carers a much-needed break while ensuring your loved one receives the compassionate and professional care they need.

When should you consider home care for someone with a rare disease?

Home care should be considered when your loved one needs help with daily activities or when managing the disease becomes challenging. If you notice they’re struggling with personal care, and medication routines, or simply need more help at home, it might be time to explore home care options.

Can you provide live-in care for people with a Rare Disease?

Yes, we can provide live-in care for people with rare diseases. Our live-in care service ensures your loved one has dedicated, round-the-clock support tailored to their needs.

Unsure which service is best for you?

Contact our care team using the form below or by calling our office and we'll organise a free consultation to advise you on your specific care needs.

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